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Post by finding on Mar 27, 2008 23:41:30 GMT -5
I've been waiting for the other shoe to drop. I know, I know. . .well, it did tonight.
It appears that my oldest son had a petit mal seizure at some point this afternoon/evening. Shortly after he got home this afternoon he went and laid down in my bed. He NEVER takes naps. The respite worker and I checked on him several times and he seemed ok, just not feeling well.
A couple of hours ago I checked on him and he was cold, pale, and his coloring was grey. The good news is that he was responsive which means that he was coming out of it and it wasn't severe, but we do not need this.
Why can't things ever fucking go right?
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Post by crushy on Mar 28, 2008 0:14:40 GMT -5
Oh my gosh, girl! That must have terrified you! Is he okay now?
I'm sorry you can't seem to catch a break. I will have you and your family in my thoughts and prayers. I know you're worn out. I just wish there was something I could do for you...words just seem so empty when you want to help someone.
Crushy
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Post by melbel on Mar 28, 2008 0:26:22 GMT -5
You and your family are in my thoughts and prayer!
If you need to talk let me know....I may not know what what you are going through but I am a Mommy who has had sick babies!
Be strong...if you need me PM me! If you want I will Pm you my number...I don't sleep!
(((HUGS)))
Melissa Mae
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Post by sheyd on Mar 28, 2008 8:15:34 GMT -5
My daughter used to have "breath-holding seizures" - any seizure is SUPER SCARY... They say, though, that it isn't really hurting them, particularly the smaller ones, as long as they are in a safe environment. His bed was at least a safe environment! My fear was always a seizure at the top of the stairs...
Is he actually ill and that is what brought on the seizure, or does he just sometimes have them? I'm sorry if that is a personal question, just trying to make sure he is ok!
Shey
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Post by bobfromacctg on Mar 28, 2008 9:22:29 GMT -5
Thank God he came out of it! The grief of that situation would have been 1000 times worse. Seizures are scarey but normally controllable.
My X had seizures and was mostly controlled by medicine.
The lady I am seeing has the same thing but hers are stress induced. She has learned to know when they are coming and she either changes the situation or prepares to take a break.
It is scary and I am so sorry. Unfortunatly, one stress in life does not mean that other situations are prevented from happening - and that is a real shame!
You will work through it - it just takes adjusting to a new definition of normal.
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Post by finding on Mar 28, 2008 11:13:10 GMT -5
How much more do I have to adjust? There are two boys with autism, and a preteen girl who lost their father. The youngest has allergies that have dominated our lives, the oldest boy has had seizures off an on for years, he's hypoglycemic and will most likely become diabetic as he gets older, there is the youngest's tendon issues and club feet, three of us have asthma and two of us carry an epi pen. I am sick and tired of this shit, I just want some peace and tranquility for a while. Is that too much to ask for?
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Post by sheyd on Mar 28, 2008 11:52:32 GMT -5
That reminded me... in that class I am taking we had to read a bunch of websites... I know you DO use "people first" language all the time, "has autism" rather than "is autistic"... but I think there was something else I got out of reading this... www.disabilityisnatural.com/peoplefirstlanguage.htmYes, there are medical issues, mine and my kids' "lists" maybe aren't as long or as in-depth as yours, but I still carry my little list inside me or all the "wrongs" in us, like your list. I think, though, when I read that stuff, I realize - we all DO have different abilities and even (though I know they say not to say it this way) disabilities. The key is which one are you focusing on? Is it about working from an area of strength and these are the things you have needs about (like, healthy most of the time, need to carry an epi pen just in case) or is it about defining yourself and your family by your needs first, strengths second? My reactions to reading this page were both supportive and denial. I think we as parents and people WANT that sympathy/empathy for the "disabilities". They make life a little more work. It would be like saying - lucky you, you only work 40 hours this week, I have to work 60! Yes, we are both lucky, we can WORK... some can't. But yeah, 60 hours is tougher. Autism vs no-autism. For child and parent, obviously autism is tougher! To pretend it isn't, just denies the experience. At the same time, though - if the total focus is on the autism rather than the strengths of the child, and a false expectation that "everyone" is supposed to be same-levels, then the whole world is negative. I know that isn't how you are - you enjoy your children, work hard for them, and DO see their strengths and joy in their achievements... it was just something I was thinking about, and your listing of the medical struggles made me think about it again... Shey
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